How to pronounce "negotiate"

Translator: Joseph Geni Reviewer: Morton Bast

It's wonderful to be here

to talk about my journey,

to talk about the wheelchair

and the freedom it has bought me.

I started using a wheelchair 16 years ago

when an extended illness

changed the way I could access the world.

When I started using the wheelchair,

it was a tremendous new freedom.

I'd seen my life slip away and become restricted.

It was like having an enormous new toy.

I could whiz around and feel the wind in my face again.

Just being out on the street was exhilarating.

But even though I had this newfound joy and freedom,

people's reaction completely changed towards me.

It was as if they couldn't see me anymore,

as if an invisibility cloak had descended.

They seemed to see me in terms of their assumptions

of what it must be like to be in a wheelchair.

When I asked people their associations with the wheelchair,

they used words like "limitation," "fear,"

"pity" and "restriction."

I realized I'd internalized these responses

and it had changed who I was on a core level.

A part of me had become alienated from myself.

I was seeing myself not from my perspective,

but vividly and continuously from the perspective

of other people's responses to me.

As a result, I knew I needed to make my own stories

about this experience,

new narratives to reclaim my identity.

["Finding Freedom: 'By creating our own stories we learn to take the texts of our lives as seriously as we do 'official' narratives.' — Davis 2009, TEDx Women"]

I started making work

that aimed to communicate something

of the joy and freedom I felt when using a wheelchair --

a power chair -- to negotiate the world.

I was working to transform these internalized responses,

to transform the preconceptions that had so shaped

my identity when I started using a wheelchair,

by creating unexpected images.

The wheelchair became an object to paint and play with.

When I literally started leaving

traces of my joy and freedom,

it was exciting to see

the interested and surprised responses from people.

It seemed to open up new perspectives,

and therein lay the paradigm shift.

It showed that an arts practice

can remake one's identity

and transform preconceptions by revisioning the familiar.

So when I began to dive, in 2005,

I realized scuba gear extends your range of activity

in just the same way as a wheelchair does,

but the associations attached to scuba gear

are ones of excitement and adventure,

completely different to people's responses to the wheelchair.

So I thought, "I wonder what'll happen

if I put the two together?" (Laughter) (Applause)

And the underwater wheelchair that has resulted

has taken me on the most amazing journey

over the last seven years.

So to give you an idea of what that's like,

I'd like to share with you one of the outcomes

from creating this spectacle,

and show you what an amazing journey it's taken me on.

(Music)

(Applause)

It is the most amazing experience,

beyond most other things I've experienced in life.

I literally have the freedom to move

in 360 degrees of space

and an ecstatic experience of joy and freedom.

And the incredibly unexpected thing

is that other people seem to see and feel that too.

Their eyes literally light up,

and they say things like, "I want one of those,"

or, "If you can do that, I can do anything."

And I'm thinking, it's because in that moment

of them seeing an object

they have no frame of reference for,

or so transcends the frames of reference

they have with the wheelchair,

they have to think in a completely new way.

And I think that moment of completely new thought

perhaps creates a freedom

that spreads to the rest of other people's lives.

For me, this means that they're seeing

the value of difference,

the joy it brings

when instead of focusing on loss or limitation,

we see and discover the power and joy

of seeing the world from exciting new perspectives.

For me, the wheelchair becomes

a vehicle for transformation.

In fact, I now call the underwater wheelchair "Portal,"

because it's literally pushed me through

into a new way of being,

into new dimensions and into a new level of consciousness.

And the other thing is,

that because nobody's seen or heard

of an underwater wheelchair before,

and creating this spectacle is about creating

new ways of seeing, being and knowing,

now you have this concept in your mind.

You're all part of the artwork too.

(Applause)